Psychiatric Advanced Directives

What are Psychiatric Advanced Directives?

When an individual living with a serious mental illness experiences a mental health crisis, it is possible that they enter a state where they temporarily lose their ability to participate in making decisions for their care. Previous research and experience show that this puts those individuals at risk for forced treatment and/or jail. In order to help prevent unwanted treatment, there is a document called a psychiatric advance directive, or PAD. This is a medical-legal document in Texas that requires clinicians to read and respond to patient preferences that follow professional standards of care. It provides capacitated persons living with serious mental illness the ability to state their wishes and preferences for care during a mental health crisis. A capacitated person is someone who does not need a legal guardian to make health care decisions for them. Our team knows this is important because communities of color are overrepresented in the criminalization of mental illness. Use of a PAD helps make sure that providers review what kind of care people want during a mental health crisis.

A PAD includes 3 main kinds of treatment:

Today, not many people are using a PAD even if they are at risk of a mental health crisis. Researchers have found that one of the reasons why is that the language in the form is hard to understand. This stops people from easily filling it out and using it. This brings us to why we are here today. We are conducting a community engagement studio, or CES. A CES helps to create a better research project by including the feedback of community members (such as yourselves) from the very start of the project. For this study, your feedback will help us develop the first draft of a revised PAD form.

  • Description text goes here
  • Description text goes here
  • Description text goes here

Important Documents

Texas Psychiatric Advance Directives Form

Community Engagement Studios Toolkit 2.0

FAQs

What is a Community Engagement Studio?

A Community Engagement Studio (CES) is a tool created by the Vanderbilt
Institute for Clinical and Translational Research to help bring together different
groups of people to carry out community-engaged research. The CES model was
developed to allow community experts to provide researchers with immediate
feedback from the very creation of a project. The goal of a CES is to carry out
research in a way that is culturally sensitive and stays true to community
priorities, values and needs. To learn more about CES and the group who created
them, visit: Community Engagement Studio Toolkit 2.0

What kind of impact is being made in these sessions?

Through these sessions, we will be able to develop a community friendly psychiatric advance directive (PAD) guide. Getting community feedback will make the form easier to read, understand, and use.

What is the timeline of this project?

Our first round of studios will be in June 2023. After that, we will return for the second
round in July 2023. At the end of the second round, you can recommend someone to
go through the third round, which is a user experience studio. We anticipate that
the third round will take about 3-4 months. The end of the third studio will be a
final product, a PAD form guide. In our fourth and final studio, we will present
the product to the entire team and participants. We hope to hold the final round
in November so that we can write our final reports with a couple months to
spare. Our grant concludes at the beginning of February 2024.

Who can I contact with questions?

Please feel free to call 512.655.9843 or email at: disruptlab2019@gmail.com.